Tuesday, February 17, 2009

Trucking along

Treatment #6 - the final one is tomorrow. I made it! I am still holding onto my hair and also holding my breath that Thursday it doesn't fall out. It usually takes about 2 weeks. I kinda like my hair right now so I wouldn't mind it staying around. I got my daily anticonvulsant drug level upped and hopefully that will help with the seizures. I'm trucking along. 2/27 is getting very near and I have already started with a stomach ache. My nerves will be working overtime this next week. Maybe while I am at the clinic tomorrow I will go into the chemo room and see if anyone is on Carboplatin to see what they think of it. I need some Yoga. I also need some vacation. I get a joyful week off of work in a few weeks so that will be nice. Too bad it's without pay. Damn economy.

Friday, February 6, 2009

3 Today! WTF?

I have not had a seizure for WEEKS and now today.. 3. One early this am, one this afternoon and one literally just now. I had to wait till it was over to bitch about it. Damn. This radiosurgery better be working.

Met with oncologist today. He's putting me on Carboplatin and Avastin. I will start 2/27. Hope I don't yack my brains out like I used to on CPT11. That was the worst. I know I will be a wreck my first treatment but I will get through it. Just have to make sure the toilet is clean!

I feel fine today after my first radiation treatment. Hope to continue this way.

Thursday, February 5, 2009

First Radiosurgery treatment



Here I am laying on the table. I wanted a picture of it. I can't see what it looks like so here I am. It kinds freaks me out to look at it. I mean, it looks like I could be being tortured at any minute. Actually it kinda was near the end. They had me strapped in that mask for an hour. My ass was asleep and the back of my head was developing marks from the mesh cup that my head lay in. My dad called me and showed up. He couldn't let his little girl do it alone (awwww). That was nice of him although I got to see him for about 5 minutes before I went back into the room. Ah well. It was nice. After the treatment I went to the waiting room to collect my dad and my mom was sitting there. Double surprise! Dad had to go but mom stayed for the doc appt. The doc wanted to see me so she went too. He explained to me that he wanted to do 6 treatments instead of 4. I'm not concerned. He knows what he is doing, right? So we went over some stuff that we had already been over but mom had some questions. I love the way he answered one of hers! She wanted to know what happens with re-growth - if there were to be any. The doc told her she should not worry about that. She should focus on what is happening now. I hope she heard him.

So the treatment was a snap. I laid there , got zapped and went home. I worked out - I actually did 2 classes and now I am home. I have to take my steroids and then I am in for some TV watching. The best part of my day? MY SISTER RETURNS HOME TOMORROW!!!!!!! YES! I can't wait to here her voice. It's been a long 2 weeks.

One more thing. I love this - my friend's son called me today to tell me he was thinking about me and hopes I get better soon. He's 8. How cute is that?

Wednesday, February 4, 2009

New journal

If you don't get enough of me here - try here!

http://www.caringbridge.org/visit/jennifermartin

Focus

One good thing - I still have a job. A job I have lost focus of because of the current information, layoffs and an oncoming cold. It's really hard to sit at your desk and be interested when the mind is a million thoughts away and you REALLY are not liking what you are tasked to do. Like I said, It's a really good thing I still have a job. Phew. For now anyway.

Tomorrow I start my radiosurgery, I'll get zapped 4 times. I had my mask made on Monday and had simulated radiation treatment. I will be laying on a table with a mask over my face that is attached to the table. It will keep me still while the radiation is administered. I'm a little frightened. Just that it is all starting again. There won't be any side effects for now. Doc says that the side effects that may happen will be stroke like. More likely I will have another reoccurrence before I experience radiation side effects. My side effects that i have had for the last week are nausea and fatigue from the stress. Oh and I think my left shoulder is up around my ear it is so tense. I am going to try to get a massage this weekend. Whoo hoo! Anyone???? Anyone???

There are so many people around me to support me. I love you all.

I'm going to try to take a pic of me laying on the table - I've never seen it. If it's not too horrifying I'll post it.