Monday, April 27, 2009

9 years and holding

It's been 9 years since my first surgery. OMG! 9 years!! I can't believe it! Nine years ago I though I would live 2 to 5 years and here I am. Whoo F-ing hoo!! It's amazing. I amaze myself at times. Like today. I got up and went to work, came home and went to kickboxing and now I am watching some TV. Yeah, hi, how many Brain Tumor patients can say THAT! I hope a lot ;) Love to you all on my anniversary.

Tuesday, April 14, 2009

No fun at the ER

I have a rash type thing going on on my legs that is actually petechiae. A symptom that my platelets are low. I noticed it at work yesterday and called my oncology nurse and she told me to head to the ER because I may need a transfusion. Holy SHIT! I headed out of work in a panic and tried to keep myself calm while I drove to the ER. This is the first time this has ever happened go me. Ugh! I called Todd and my family to let them know and my mom joined me in my 3.5 hour wait at the ER. Todd would be on his way in a flash if the situation was worse. Anyway... after all that, I waited for my blood levels and they sent me home with orders to repeat blood draw Wednesday. No transfusion. WTF? 3.5 hours. My doc was cute anyway.

Sunday, April 12, 2009

Surprise for me

How do I say thank you for the most unselfish, unforgettable thing? I haven’t the slightest idea how.

April 6, an ordinary Sunday, Todd and I headed out to his parents house to have dinner with them. Nothing strange. Little did we know what was planned. As we left for dinner with my mother and father in law they mentioned that they had to stop at a function before we went to dinner. Todd and I didn’t think anything of it. We were still oblivious to the master plan. Bill drove us to Waldenwoods Golf Course and as we got out of the car I looked to my left thinking “that truck looks like my sister’s….. that van looks like Tim’s….” I didn’t have enough time to put together the coincidence before I turned the corner into the banquet hall and saw about 70 people yell “SURPRISE”! As I stood there in wonder and shock I heard my brother in law, Jason, talk on the microphone about how this is “your day”. I looked into the crowd and saw so many faces that I love; my family, my friends, my life. I saw people that have been with me since day one of my diagnosis. People who have been with me through the MRI’s, hair loss, nausea, and all of the downs. And, of course, now here to celebrate one of the best days of my life. As I went around saying hello to everyone and catching up with people I had not seen in years, I was having a great time. I thought what a great idea! My family and friends put on a benefit to raise money for brain tumor awareness in my honor. I was still oblivious!! We all sat down to a nice spaghetti dinner and had yummy cake and I got to talk to everyone again. Jason got back on the mic and made and announcement that made the whole night become clear. The benefit was for me and me only. I was presented with a check that will allow Todd and me to take a dream vacation. That was the second shock of the night! The night continued with door prizes and 50/50 drawings. We even danced to the great playlist Jason put together.

My sister in law planned the whole night! A night that my family and friends came together to give me a dream. A dream vacation to go to Ireland. I’ve been loosely planning the trip with my friend Klaudia. We had settled on a year and now it was time to save money. The money is no problem now. Through the kind hearts of the wonderful people in my life, we can now go. 2010 is the year!

Thank you everyone for what you have done for me and Todd. We will never forget the kindness expressed for us.

I could never ask for better people to be surrounded with in my life and through my journey. Most of all, I couldn’t ask for a better sister in law. Thank you so much Sandy for all you did. Thank you for being the one who made this all possible. I’ll never forget it.